Page 1: Participant Information

PARTICIPANT INFORMATION SHEET 14.11.17

Title of study: An investigation of perceptions of dementia, attitudes towards people with dementia and knowledge about the condition. A follow up.

Name of Researcher:    Janine Crosbie

You are invited to take part in a questionnaire study which investigates knowledge about dementia and attitudes held towards people with dementia.  A similar study was carried out over 10 years ago, and this current study will allow researchers to establish if there has been a change in attitudes and knowledge.  The questionnaire is available online and will take about 15 minutes to complete.

 What is the purpose of the study?

The study will provide information about the current knowledge base of the general public about dementia and how dementia is viewed.  This will then be compared to the findings of data collected over 10 years ago to identify whether there has been a change in public knowledge and attitudes, during this time.

Why have I been invited to take part?

You have been invited to take part as a member of the public with access to the internet.

 Do I have to take part?

You do not have to take part and should you decide to answer the questionnaire you do not need to answer all of the questions.  Please take time to consider if you want to take part, we suggest leaving 24 hours between reading the information sheet and completing the questionnaire.

 What will happen to me if I take part?

If you take part you will be directed to the questionnaire on onlinesurveys.ac.uk.  You will be asked to provide a participant number, please make a note of this.  On the first page of the questionnaire you will be asked to confirm that you are aged over 18 year and that you agree to take part in the study.  The questionnaire then asks some demographic questions, about age, gender and education.  You will then be asked some questions about what you might do if you experienced memory problems and how you would interact with someone with dementia. You will then be asked some factual questions about dementia.

 What are the possible disadvantages and risks of taking part?

Before taking part in the study, you should consider if you will be upset by answering questions about dementia.

 What are the possible benefits of taking part?

The study may not directly benefit you, but will go towards gaining an understanding of perceptions about an important condition.

 What if there is a problem?

If you have any concerns about the study please contact the researcher, Janine Crosbie, Allerton Building, Frederick Road Campus, University of Salford, Salford, M6 6PU. Tel: 0161295062. Email: J.Crosbie@salford.ac.uk

However, if you remain dissatisfied, please contact Dr Susan McAndrew, Chair of the Health Research Ethics Panel, Room MS1.91, Mary Seacole Building, Frederick Road Campus, University of Salford, Salford, M6 6PU. Tel: 0161 295 2778. E: s.mcandrew@salford.ac.uk

 Will my taking part in the study be kept confidential?

All replies will be kept confidential.

What will happen if I don’t carry on with the study?

If you wish to withdraw from the study, you can do so by not completing the questionnaire and emailing the researcher with your participant identification number. Your data will then be removed from the sample.

 

 What will happen to the results of the research study?

Your data will be considered with all the data collected, and will be analysed by the researcher.  This work will be then be written up for publication in a journal.

 Who is organising or sponsoring the research?

The University of Salford

 Further information and contact details:

Please email Janine Crosbie (Researcher) J.Crosbie@salford.ac.uk